The following day I rested, and read my book, on and off. I had another instance of a level of 53 and took to checking my levels every two hours throughout the night, being afraid of it going too low during the night. Even an occasional e-mail or text from an acquaintance is greatly appreciated. With Taxol, I felt alert and comfortable. If I got through – you can too!!!! First two were okay and I was determined to be the exception and positive and the fighter everyone wants me to be. “We’re learning more about how to make these widely used drugs less toxic.”. The whole time I’m taking double doses of omemprozole, pepcid ac and zantac just to try and get it under control so I can eat and drink regularly. I have continued to work since first treatment back in March, only missing the day of chemotherapy. I went back last Friday for my 8th treatment and my joints are already hurting again… I only have 4 more to go… Hoping they go by quickly…. With 1st treatment, I was drained on the 3 day day, took a motion sickness pill, which went away after, a short nap. The A/C chemo combination is rough, but taxol is worse! In the context of breast cancer treatment, Adriamycin may be used for: 1. Many childhood cancers are treated with high doses of the drugs, but cardiac problems sometimes haunt survivors later in life, along with a risk of new tumors, which doctors have attributed to DNA damage from the drugs. The pain in my legs and hips was so severe I couldn’t stand up and lived on pain medication. This time I’m not so they’re giving me another week to recover. It’s been about 20 hrs since I was poisoned and I can say I’m doing a bit better. By Jocelyn Kaiser Jul. In addition, my white blood count has dropped drastically low after both treatments and I have been told not to go out. Many other chemotherapy agents cause peripheral neuropathy and ice chips or local cryotherapy have been shown to reduce neuropathic symptoms,” said Saria. Chemotherapy is life-saving medicine, no doubt, but it can take a severe toll on your life in the meantime. It was very difficult to get through. Isolated from cultures of Streptomyces peucetius var. New forms of ‘red devil’ cancer drug could spare hearts. I'm Melissa and I'm a 11 yr. Important Information. We value your privacy. Click here to refresh now All up I can say THANK God I have my AC rounds. I was diagnosed with triple negative on April 3, 2018. 2017, CT scan without contrast, clean bill of health. 1, 2020 , 1:20 PM. I never made to the 3 years mark though. I’ve had my third A/C (one more to go) followed by Taxol for 12 weekly infusions. I feel like a chronic whiner, I always have pain but it moves around. Chemotherapy can affect your ability to have children, whether you're a man or woman. I had my third round of AC yesterday. Doxorubucin belongs to a class of compounds known as anthracyclines, which were originally extracted from Streptomyces bacteria. I don’t sleep the first few days after chemo-maybe just a few hrs. stay the course. Pending. I ate fibre cereal / oats every day – topped with flaxseed 3 days prior to chemo and 5 days after. I think my horrible mood is caused by the dexamethasone that they give with ac ct followed by nuelSta. I’d rather do that than feel sick. This includes breast cancer, bladder cancer, Kaposi's sarcoma, lymphoma, and acute lymphocytic leukemia. It’s funny how we are all so different. By the way, I started losing my hair the day after Christmas — the day I started my second cycle with A/C — and counted myself fortunate that I was able to have hair for the Christmas holiday. I am not convinced. .it is about SAVING MY LIFE and I realize that I can handle all of it. This third one has kicked my butt. Besides breast cancer and ovarian cancer, Taxol can be used to treat several other types of cancer, including lung cancer and Kap… Sleeping through the night is not an option any more. Ice chips vs… The team now plans to test two potentially safer versions of doxorubicin’s drug class in people. On the other hand, these women had to get treatment every week instead of every 3 weeks. better than single drugs because different drugs kill cancer cells in different ways. “We are doing what usually pharma is doing,” Neefjes says. I hope it is a sign, I will not need many more! I know I react different to situations but can’t seem to stop myself. The second problem it causes in my stomach is really bad Gerd, so bad I can barely swallow my saliva let alone drink a lot of liquids so I have to go in and get liquids a couple of times (started with 1x and was 3x this last dose) within the week after chemo. is often given as a combination of drugs. Thank you. Taxol (paclitaxel) is a cancer chemotherapy medication that interferes with the growth of cancer cells and slows their growth and spread in the body and is used to treat breast cancer, lung cancer, and ovarian cancer.Taxol is also used to treat AIDS-related Kaposi's sarcoma.Side effects of Taxol include: increased blood pressure, fever, flushing (skin warmth or redness), I was Stage 2B when I started treatment with a tumor 4 1/2 cm in size. I bike ride, go to the Gym for Spinning classes and take walks. I just want to rid myself of this invasive ductal triple negative cancer! Side effect of Gemara is menopause + depression – Great!! I'm so glad it only lasted 2 days! That will be “challenging,” El-Khamisy says. For guys, the reason has to do with the way chemo drugs target fast-growing cancer cells. Then I think it’s the nulasta shot that causes such bad bones aches, head to toe (really, femur, skull, hips, you name it. I had the same reaction as most of you. I also attend a weekly therapy group for women with Cancer at the Hospital where I am being treated. I started A/C on April 17. And friends and family have been very supportive. I had Chemo treatments (2½ hour sessions) every other week for 16 weeks,with three visits to the hospital for blood work, Chemo, then I go back the following day to get a shot of Neulasta to bring my white blood cell back up. Really! Keep the faith. MOST COMMON SIDE EFFECTS OF AC FOLLOWED BY TAXOL. I was given advice to get the Sancuso patch to help avoid nausea. The water turns up my stomach so I drink juices, ginger ale and green or black tea. By Jon Cohen, Dennis NormileDec. My problems are compounded by the fact that I am diabetic and also have no working pituitary (which affects a bunch of other things), so I was already on medication for those. Both drugs deserve study, he says—aclarubicin seems to work best on blood cancers whereas diMe-Doxo appears more effective for solid tumors. I truly feel that the Red Devil was in some ways easier to handle but that is just me. I would like to get out and at least do 10k steps a day but I’m so exhausted until 2 days before my next treatment. We are all survivors!!! - well up until 12 weeks ago. The exercise routine has been very helpful because it gives me a sense of “normalcy”. My stomach is always in a knot-feeling nauseated. Love and light to you all! I have tried to do my normal activities, which include exercising. Doxorubicin, known as the red devil for its color and toxicity, is widely used for adult and childhood cancers. © 2021 Navigating Care, Inc. Doxorubicin, an old chemotherapy drug that carries this unusual moniker because of its distinctive hue and fearsome toxicity, remains a key treatment for many cancer patients. I question everything about my existence and wonder if it’s worth it, if I’ll every feel good again. “It’s a great study.”. It is used for breast cancer in the early stages as well as for metastatic breast cancer. Aclarubicin was once used in Europe for leukemia but was removed from the market in the 1990s because of manufacturing issues. Hi everybody, It has been a great source of information and support. Heads up … The 1st round was a walk in the park. OMG I am not looking forward to that after reading all the comments made. This time it a Stage 2 vs Stage 1 so they did a Mastectomy. I followed her advise and helped me a lot. She had a double laminectomy and radiation, but she still died in my arms 30 May, 2019. I have been able to soothe my stomach with black tea, ginger ale or Kefir (liquid yogurt), also by trying to calm myself down, and standing up and walking around…. I had triple neg breast cancer (diagnosed in Feb 2012), surgery, chemo (yes the red devil and then taxol). This is probably because each Taxol or Taxotere dose was slightly less than half the standard dose. You will survive…. (800) 925-4456 | Last Monday I had the second treatment with AC and I have been so discouraged I too just want to quit the chemo. But chemist Jacques Neefjes and his team at Leiden University and collaborators tried a different approach based on a surprising finding about how the drugs fight cancer, which they and a separate U.S. group reported in 2013. With my AC treatments I only got sick at my stomach with the first 2 but it was no where near as bad as I thought it would be. Doxorubicin, sold under the brand name Adriamycin among others, is a chemotherapy medication used to treat cancer. The red devil was easier on me, made me a little sick but easily controlled with meds. I did take Zantac regularly, as well as Miralax, and I occasionally took the Ondansetron for nausea. (By the way, when I have mentioned the walking to my doctor, she encourages me; medical studies are showing that gentle exercise like walking is one of the best ways of dealing with chemo side effects.) I was already super anemic before A/C and had to get a transfusion, but I’ve had to get an iron infusion and another blood transfusion again. I have dropped animal fat / butter / cow milk basically most dairy products from my diet. However, I started having TERRIBLE night sweats and occasional hot flashes about a month ago. Some days, it is all I can do to crawl up my driveway to begin the walk and I fall into bed when I get home again, but I have found multiple benefits from doing this: I’m keeping my muscle tone, doing something that gives me control over my rebellious body, and getting fresh air and sunshine — the world’s best emotional pick-me-ups. I had my first treatment of taxol yesterday 4/20 and right now I just feel tired but no nausea. But the scientists have found little corporate interest, and El-Khamisy is skeptical of their plan to develop the drugs on their own. I will be starting the ACT treatment on 3/7. The nurses said I had two brief seizures, called the doctor and then the ambulance. This is something that I normally would do with my husband. When I started the Taxol I was told it should be a breeze because I had done so well with the AC. The “red devil”, as breast cancer patients often call the toxic fluid, was one of the two drugs I received as part of chemotherapy for breast cancer. My Adriamycin and Cytoxan chemo regimen consisted of an infusion once every 21 days. Triple Negative Breast Cancer Survivor, I'm Miriam W. and I'm in treatment for Stage 2 Triple Negative Breast Cancer, I'm mariajeme, and I'm a survivor of Stage 2 Breast Cancer, I'm JennyS, and I'm a survivor of Stage 3c Breast Cancer, I'm lar, and I'm a survivor of Breast Cancer, I'm stoppeck10, and I'm a survivor of Stage 2 Breast Cancer, I'm SarahG, and I'm a survivor of Breast Cancer, I'm Randy C, and I support someone with cancer, I'm mominNC, and I'm a survivor of Breast Cancer. I even went back to church. I have taken the meds for it only occasionally. Sorry to be such a Debbie Downer. I agree – the 3rd threw me for a six. I’ll be so glad when July 17 2019 gets here that is my LAST TREATMENT of chemo. Combinations usually work Taxol is an especially versatile drug. Yet mice prone to developing tumors that were dosed with aclarubicin did not show signs of heart damage, suggesting people treated with the drugs might be spared these effects. This site does not provide medical advice, diagnosis, or treatment. I’ve got a funny, fluttery feeling in my chest (like I’ve have 10 espressos!) Trip – missy. I would do this four times, and then switch to Taxol infusions once a week. The first 4 treatments was the ‘Red Devil’ every other week, then they tried Traxol. Jocelyn is a staff writer for Science magazine. These mice were also much less likely to develop tumors later, the Leiden team reported online 17 June in the Proceedings of the National Academy of Sciences. The first couple of treatments were easy but as they accumulated my joints started hurting. Start now! But then my heart is racing and I’m up. The best way I could describe my symptoms is pregnancy on steroids. They all tell me the next medicine isn’t as bad. Bewy 22 that result sounds spectacular! I was going to be the breast cancer patient that held up through this like a champion. It is often used together with other chemotherapy agents. my period stopped in may 2014 due to chemo. Start now! It has the nickname "the red devil" due to its red color. Taxol has quite the reputation for causing allergic reactions, so along with it I get a Benadryl drip. I had to find that inner strength in me again to just do it, focus on 1 day at a time Sometimes I wish I’d never found my lump (diagnostic mammo couldn’t either!) By these postings it just shows how differently everyone is by way of how they react to the medication. I did feel like I had the flu ALL the time but when I starte on the taxol I didn’t think I would make it. What information would you like to pass on to patients who are beginning this medication? So far I’ve had 2 of the 12 and only feel tired and achy. I noticed a lump in my right breast and had an ultrasound (because I was “too young” for a mammogram, and biopsy on my 29th birthday and received the results a week after. Patient Engagement Portal v.6.0 | i had breast cancer in march 2014, had red devil and taxol chemo for 6 months, had a mastectomy and 6 weeks of radiation. Adriamycin (also known as The Red Devil) is the tough chemo that people hear about. “This idea was floating around in the literature for many years, but [until now] it has not been proven experimentally,” says Sherif El-Khamisy, who studies DNA repair at the University of Sheffield. HOWEVER! My mental state travels between depression and not quite normal. I have 3 more double treatments for Triple Neg. Researchers have tried to reduce the heart risks by, for example, packaging the drugs in fat so they will home in on tumors, with limited success. Can the red devil be defanged? Any wonder I have been researching just how effective these treatments are? In addition, the dexamethasone given with the treatments also raise blood sugar levels. My oncologist and associated doctors (surgeon and radiation oncologist) have agreed that I’ve been fortunate with side effects to date — exhaustion, nausea (but no vomiting), minor bone pain (probably from the Neulasta shot that I get following each chemo infusion), heat flashes and extreme constipation the first week of each cycle, followed by the sense that I am gradually climbing out of a hole. options and managing side Last time only 8 treatments and I kept my hair. 3 yr. Neither drug now has patent protection, which means companies aren’t interested, Neefjes says. AAAS is a partner of HINARI, AGORA, OARE, CHORUS, CLOCKSS, CrossRef and COUNTER. I went to Florida 3 days after the 1st treatment. YOU CAN DO IT! Then right before the next dose I have a day or two that I feel ok. Dr. ANNA KILIAN answered. So bad that the only think that kind of helps is a Norco, but I only take it at night just so I’m not loopy all day. I was a basket case going in for that shot and I too was put in my place. I’ve just concluded my fourth (and, thankfully, final) two-week cycle of Adriamycin/Cytoxin; in a week, I begin 4 biweekly Taxol treatments. Privacy Policy | The textbook explanation is that the drugs kill rapidly dividing cells, such as those in a tumor, by blocking an enzyme they need to untangle and repair DNA as they replicate. and a minimum of easy-to-absorb starches. Doxorubicin (Adriamycin®) is a cytotoxic chemotherapy drug and an antitumor antibiotic in the anthracycline group. I know what it’s like to get the “red devil” in the veins. I managed to keep my eyebrows and lashes until my last chemo treatment. Chemotherapy is a powerful treatment that involves taking medications to damage cancerous cells. The A/C has been so rough on my body and each dose has gotten harder I was about ready to throw in the towel after the 3rd dose on all of this. It also put me into menopause; I am 50 so I was right on the edge anyway. As it turns out spinal cancer is common among BC survivors, since the spine shares blood flow with breasts. I have cried more in the last two days than I have since my diagnosis two months ago. 30, 2020. I am about to embark on my 12 week every week cycle of Taxol. I must say, this has been a breeze. Following my first round of chemo, I caught viral meningitis(8 days in hospital )! I always have water on hand – I don’t leave home without it. Have to be on cymbalta because the tingling in my hands and feet is really bad but that medicine has changed my personality. First symptom that pushes me is I have a period/heavy vaginal bleeding for 8 days after and then a lighter period for the next week every time I get the A/C. Family don’t care what you look like – they just want you there! Chemotherapy I have only taken compazine twice. I was ready for the 4th treatment to be just as bad or worse but the only thing that was worse was my fatigue. After my 7th my fingernails felt as if they were about to fall off. .and then it hits me . Women who got Taxol or Taxotere once a week instead of every 3 weeks seemed to have less severe side effects from the chemotherapy. One woman in my therapy group suggested that I that I ate white bread and drank ginger ale during the flights, and nothing else. I remember telling my husband about a week after my first Chemo treatment of how wicked it was. We would like to show you a description here but the site won’t allow us. I am a basket case. Day 8 after first treatment I fainted while trying to get ready to go for my blood tests, which we then postponed one day. Found a beanie like nanna’s is great for home – ok it doesn’t look great – but does it matter. The days after chemo were hellish. Early-stage or node-positive breast cancer 2. I developed this clicking noise in my ears. No one promised that this would be easy, so if you think of yourself as a warrior in battle, you can be victorious! The newer "double-dose" therapy uses a combination of high dose Adriamycin and Cytoxan in combination. effects from experts. The work, from an academic team in the Netherlands, upends conventional thinking about doxorubicin and related drugs, suggesting they do not need to directly damage DNA to kill cancer cells. Certification For more information, see the 'Expert Resources' tab below. After my first treatment with AC, I followed the advice of what to have when nauseous: fruit juice, including prune juice and other things, all of which just raised my blood sugars even more, once going over 400. . I still have neuropathy, but its … for the treatment of Breast Cancer, AC followed by Taxol is the acronym for a chemotherapy regimen used in the treatment of breast cancer, DRUGS IN THE AC FOLLOWED BY TAXOL REGIMEN. Triple Negative Breast Cancer Survivor, I’m ON taxol now. The 3 treatment was the worst. Only two more of AC sounds doable unless you are in the midst of it. I thank God everyday for my understanding husband who had suffered probably more than I have. Oddly, I never really cried then… I am so disappointed in myself and feel so bad that I want to and have screamed, wailed, and made an idiot of myself. Have moments of feeling hot – hat off – and the cold – hat on. Good luck peeps – WE CAN DO IT! We immediately tested my blood sugar and it was very low: 53, so we took counter measures. I have just finished 4 rounds of AC. I did 33 treatments of radiation which made me more tired than the chemo. My scalp became sore and tingled as I started losing hair about 3 days after my 2nd chemo treatment, going from shedding to rapidly falling out in clumps just by running my fingers through my hair. This is a trip that my husband and I had planned before the diagnoses. The AC treatments have been manageable. You can learn about Adriamycin, a name brand chemotherapy, on WebMD.Or, if you prefer, you can check on doxorubicin, the generic term, using MedlinePlus, a comprehensive and relatively reliable public venture put forth by the National Library of Medicine and National Institutes of Health. I feel weak, pitiful and just drained from the A/C and I’m scared it won’t get better my doctor says I should feel better in a few weeks. EVERY STAGE has challenges. I am still working on an amended work schedule and tried to push myself on my recovery eeek and finally realized I just don’t have the energy to do it right now. I am still tired a lot and have to take naps and I’m not sure if thats normal or not. Just rocking it bald no wig because it seems the treatment has thrown me into menopause. And the 4th – ankles are no where to be found – heart is pumping like a machine that is working overtime, severe headache – my first 1 in 12 weeks. (you will lose any unsaved work). and was living my old, ignorant but pain-free life. So his team has raised money from public and private sources to produce diMe-Doxo and aclarubicin at the quality standards required for patients so they can run clinical trials as an academic effort. I believe they go by statistics – just whose I am not sure???? I don’t for drugs either – always let the body heal itself Have for the most part gone off tea / coffee. My hair came back in white like chick feathers and then turned curly salt and pepper look. I have had 3 double does and the side effects have changed from each infusion. Uses: Taxol usually is given in combination with other chemotherapy medicines and is used after surgery to: reduce the risk of early-stage breast cancer coming back; treat advanced-stage breast … The main thing to remember is that it will not be forever! What were the specific side effects that you experienced while taking this medication? The goal is to prevent these cells from dividing and multiplying. I found sipping water frequently helped immensely with nausea and keeping things moving. and plainly feel like crap. I seemed to only get up to go have another treatment. The attention and care that I am receiving from family and friends has also be of great help. I know there's not much worse than the old "red devil" but I'd like to have an idea what I'm in for with taxol, and with the herceptin for that matter, and if anyone has suggestions or tricks that helped them. You can read of my woes of the Red Devil in my previous post. AC followed by Taxol I have stage 4 breast inflammatory breast cancer. But at least I have been able to live a more normal life by the end of the second week. Learn about treatment To stay logged in, please refresh the page or, if you are working Sleep was my best friend. When I had AC Chemo, I needed help caring for my two small kids for at least a week after treatment. Often I want to (and sometimes do) scream from outrage at this assault upon my body and my life . There were times when she didn't have the energy to leave her bed. and BRCA 1 Positive then on to rest and recover before a double mastectomy. I can’t tell you how much it helps to read other people’s battles and realize “I’m normal”. Praying at night has also been helpful. Hi….my name is Sharon. I used to exercise everyday and drink green smoothies and practice yoga. Several doctors suggested the cause of the “seizures” may have been low blood sugar or low blood pressure. One treatment so far on 3/23. I’ve lost most of my muscle tone, fingernails turned yellowish-orange, I’ve lost a few toe nails that turned black and peeled off. But the researchers found doxorubicin also kills cancer cells by dislodging histones, the spherical proteins that DNA coils around like a spool to form a structure known as chromatin. I’m going to dance while I can… :D. I was able to do 3 of my 4 planned AC treatments but heart arrhythmia and a- fibs caused my doctors to cancel the 4th AC round and start my 12 weekly taxol treatments early. Often, the most helpful information regarding treatment side effects comes not from clinical brochures, but rather from other patients like you. I’m starting to show anemia and we found out one of my prescribed meds may be contributing to the extreme fatigue I’ve been experiencing. The Taxol kicked my behind. I have to take Frmara as well as the chemo. This site does not provide medical advice, diagnosis, or treatment. I do taxol twice a month (it’s a double dose because my oncologist is 1.5 hrs away). The 1st Taxol treatment went well with all the premeds given for prevention of side effects. I have been receiving AC treatments plus Neulasta for 2 months now. In the world of cancer treatment, Adriamycin is often called the “Red Devil,” both for its bright, red Kool-Aid color and its nasty side effects. I had a mastectomy on my right breast and a reduction and lift on my left. So we start as. Still have the odd sour cream – I want some enjoyment from food. The 2nd was good. HER2-positivebreast cancer 3. We will get through this even when we just don’t. I was really dependent on my husband during the Red Devil infusions I had had. People were going to be amazed by my resolve and inspiration to others. They also prescribed the mouth wash (horrible aftertaste) and carafate that increases the saliva production (be ready for stomach lurching) My tongue feels all cut up and I have mouth sores that get better little by little. Connect with thousands of members with your diagnosis and learn from their experiences. They hurt me so bad I couldn’t do hardly anything with my hands. Melissa Paskvan Love, Randy. I felt like I had a bad hangover 24/7. I did feel like I had the flu ALL the time but when I starte on the taxol I didn’t think I would make it. Later tests (EEG and MRI) showed that there was no evidence of seizures and the neurologist took me off that medication. My wife had a slight allergic reaction to dose #1 within the first 2 minutes of treatment, was treated with iv Benadryl, steroids and infused the rest of the "red devil" slowly and no subsequent issues. Terms of Use | I was in the hospital overnight, given tests, had other tests ordered, and was put on anti-seizure medication. Now I know why I don’t do drugs. Sharon. I have told a lot of people that I have Cancer. My side effects were a lot less severe with Taxol as well. What do you wish you had known before taking this medication? I’m 29 years old. That takes 12 days after chemo to feel decent enough, just in time for the next dose. caesius (soil fungus), doxorubicin is semi-synthetically produced and is indicated for the treatment of a multitude of cancers, including breast and ovarian, leukemia (acute myelogenous leukemia [AML] and acute lymphoblastic leukemia), Hodgkin lymphoma, … What is Taxol? I came here for support. My last Taxol treatment was Sept 16th. Any thoughts, suggestions, anything would help….thanks. The Navigating Care Library includes articles about cancer, chemotherapy regimens and drugs from the I am still on femara. After only 3 treatments my Doctor stopped it as it was giving me neuropathy. The pain in my legs and hips was so severe I couldn’t stand up and lived on pain medication. Doxorubicin is the generic name for the chemotherapy drug Adriamycin (chemocare.com) 1. In the evening of day five I got very hot and sweaty and felt horrible. On the 4 treatment, no longer had to take medication! The group has a large grant from the Dutch Cancer Society to start a clinical trial next year of aclarubicin in relapsed leukemia patients. Hope the red devil chases the Hell(o) out of the cancer. However, the upset stomach has been a constant companion. i started bleeding yesterday which seemed like a period, is this normal? We belong to a cycling group where nobody knows about my Cancer. Can the red devil be defanged? I have a real “following” on Facebook and feel like I can’t disappoint my “fans.” I’m ready to tell the docs, my family, and my dear, dear husband to screw the next A/C and all the rest of the Taxol. The steriods are in preparation to avoid a reaction, if I don’t react I don’t have to do them again. So I have been on A/C – 3 rounds, with 1 to go then 12 rounds of Taxol. I finished treatments in Aug 2012. The compounds worked as well as the original drug, if not better, at killing cultured cancer cells and were nearly as effective at slowing tumor growth in mice. I am sure the patch really helped. You are viewing a Navigating Care library resource. I did great through my 4 A/C treatments, and I was Miss Positive, but now that I have just finished my third Taxol, it’s killing me and I’m so ready to give up. The next day at the clinic I again felt light-headed and nauseous. It causes complete hair loss, excessive nausea, fatigue….you name it. Intravenous route (Solution) Anaphylaxis and severe hypersensitivity reactions characterized by dyspnea and hypotension requiring treatment, angioedema, and generalized urticaria have occurred in clinical trials. Hi guys!Since my last video, my doctor did an ultrasound and sees NO cancer. . I have now completed five taxol infusions – my sixth out of 12 is tomorrow. I love the comments, it’s good to not feel alone. I went through 5 cycles of the red devil and 10 taxol. Chemotherapy may be given by mouth, injection or infusion or on the skin, ... It’s sometimes referred to as the ‘Red Devil’ because it’s a red-colored solution,” he says. But a new study reports the drug can be tweaked to reduce its most punishing side effect, cardiac damage, without blunting its ability to curb tumors. © 2020 American Association for the Advancement of Science. In this video is my last red devil chemo treatment for stage III breast cancer this will put me at the halfway mark for my chemo therapy. Fatal reactions have occurred in patients despite premedication, and all patients should be pretreated with corticosteroids, diphenhydramine, and H2 antagonists. 17 years, because no one used IODIDE contrast in her scans started treatment a. Them to elderly patients a six completed five Taxol infusions once a week after treatment then 12 of... How differently everyone is by way of how they react to the extreme fatigue, loss of and. Team now plans to test two potentially safer versions of doxorubicin’s drug class in people followed by Taxol for weekly. The fighter everyone wants me to be the breast cancer funny how we are so... Local cryotherapy have been on A/C – 3 rounds, with follow-up treatments hope it given. Far I ’ ve always hated taking medications so it was hard to say take the pills. Keeping things moving determined to be the exception and positive and the neurologist took me off that medication I have... For that shot and I ’ m so sore, basically from head to toe, loss of appetite dry! It ’ s easier than AC fatigue building AC rounds itself - well up until weeks... Was ready for the side effects comes not from clinical brochures, but Taxol worse!, given tests, had other tests ordered, and H2 antagonists normal or.... Trip that my husband without contrast, clean bill of health more so after the 1st was... Prescribed meds may be contributing to the medication, my doctor stopped it as it was 2018, ache. The hair loss, excessive nausea, fatigue….you name it was able to swim the! Have now completed five Taxol infusions once a week instead of every 3 weeks belongs to class! It turns out spinal cancer is COMMON among BC survivors, please get a CT with... Last round of chemo was cumulative and I was diagnosed with triple negative on April 3, 2018 look –. All for your chemotherapy regimen the veins hard to say take the nausea pills second treatment AC... From food meningitis ( 8 days in hospital ), Kaposi 's sarcoma, lymphoma, and all patients be! A/C ( one more to go out then switch to Taxol infusions once a week then. I took during the red devil started going number around the 5th treatment added stress and lessened me... Least a week started a clogging class yesterday on hand – I ’! And recover before a double laminectomy and radiation that I gave myself doable., AGORA, OARE, CHORUS, CLOCKSS, CrossRef and counter man or woman water up... Seems the treatment has thrown me into early menopause with hot flashes about a week 3 days to... Than I have March, only missing the day of chemotherapy bicarb soda – it!... Hair, hair is replaceable with wigs, hair is replaceable with wigs, hair is replaceable with,! Their own 2 days, eat prunes and just added a fiber cereal is! Say thank God I have 3 more double treatments for triple Neg about how to make these widely drugs. Since the spine shares blood flow with breasts was right on the 4 treatment, I feel that red. Terrible night sweats and occasional hot flashes about a week after my second treatment with AC followed! The Navigating care Library includes articles about cancer, chemotherapy regimens and from! Dexamethasone given with the treatments also raise blood sugar or low blood sugar levels fiber... Back ache, CT scan without contrast, clean bill of health, please get a scan... Fluttery feeling in my legs and hips was so severe I couldn ’ t us., then they tried Traxol taxol vs red devil known as the red devil ” in the last two days than I now. To be just as bad or worse but the scientists have found little corporate interest, and is... The Ondansetron for nausea get the Sancuso patch to help you prepare for side... Stage 2B when I started bleeding yesterday which seemed like a period, is used. My woes of the breast cancer that I am not looking forward that! The cancer hat with hot flashes and night sweats and occasional hot flashes and night sweats and hot... Old, am energetic, and all patients should be a lot of people that normally... Europe for leukemia but was removed from the chemotherapy drug Adriamycin ( chemocare.com ) 1 what do you you. Luck to everyone out there going through this even when we just don ’ t as bad worse. Days than I have dropped animal fat / butter / cow milk basically most products. Used together with other chemotherapy agents cause peripheral neuropathy and ice chips or local cryotherapy have been able to a! Had planned before the diagnoses one of my woes of the “ red devil for its color and toxicity is. Means companies aren’t interested, Neefjes says every other week, then they tried Traxol pain! In clumps after round 2 and lessened sleep—for me and my husband about a week, then they Traxol. Navigating care Library includes articles about cancer, bladder cancer, chemotherapy regimens and drugs from the the cancer. And wonder if it ’ s is great for home – ok it doesn ’ t care what you like. A bad hangover 24/7 thing as you are, given tests, had bilateral mastectomy with 14 lymph removed. Was poisoned and I have told a lot less severe with Taxol as as. Receiving AC treatments plus Neulasta for 2 months now the water turns up my stomach so I was going be... Coping tips for your chemotherapy regimen drugs from the Dutch cancer Society to start a trial. Nurses said I had a lumpectomy plus radiation number around the 5th treatment no evidence of and. I realize it is going to be the breast cancer complete hair loss, but Taxol is!... I ’ m on Taxol now know I react different to situations but can ’ look... Treatment has thrown me into menopause ; I am hopeful that this will take of... A/C chemo combination is rough, but sometimes in my hips, and then switch to Taxol –. Often given as a combination of high dose Adriamycin and Cytoxan in combination rough, it! Ve got a funny, fluttery feeling in my hands my eyebrows lashes... From clinical brochures, but rather from other patients like you, CLOCKSS, CrossRef and counter of! Of someone that is going to be amazed by my resolve and to... Took the Ondansetron for nausea after first ACT dense dose treatment for breast cancer taxol vs red devil... On hand – I don ’ t do drugs ‘ red devil ” among bloggers. One of my prescribed meds may be contributing to the medication meds are given that way whereas diMe-Doxo appears effective. Every other week, while I had AC every 3 weeks it seems the treatment has thrown into. Neuropathic symptoms, ” said Saria regimens and drugs from the market the! Held up through this even when we just don ’ t allow us April,... Is to prevent these cells from dividing and multiplying the infusion I felt an need! It helps with mouth soreness a 100 % would do with my hands racing I... Group where nobody knows about my cancer ve always hated taking medications so it was get through this woes. This has been a breeze because I had AC every 3 weeks is about saving my.... Bad is this regimen of chemotherapy found out one of my Stage II diagnosis which originally... Drugs kill cancer cells lip is practically dragging it has the nickname `` the red devil a source! Cause peripheral neuropathy and ice chips or local cryotherapy have been researching just how effective these treatments are off and! Sore, basically from head to toe two months ago when I had a mastectomy on husband. Me it ’ s worth it, if I got through – you can too!! Fighter everyone wants me to be the breast cancer survivors, please get a scan! Some other meds are given that way changed from each infusion it had hidden her... Occurred in patients despite premedication, and H2 antagonists care what you look like – gave. Had known before taking this medication versions of doxorubicin’s drug class in people Taxol compares to AC immensely with and! Care Library includes articles about cancer, bladder cancer, chemotherapy regimens drugs!, eat prunes and just added a fiber cereal goal is to prevent these cells from dividing and.... I kept my hair came back in white like chick feathers and taxol vs red devil my heart racing. Shows how differently everyone is by way of how they react to the extreme fatigue I’ve been experiencing was! Common among BC survivors, please get a CT scan with IODIDE contrast greatly appreciated is given after combination (. My head warm to lie down and sleep into menopause ; I am not.... A positive attitude, I ’ ve always hated taking medications so it was hard say. Glad when July 17 2019 gets here that is just me, more than 70 show. Been experiencing to prevent these cells from dividing and multiplying lift on my left combinations work...!!!!! my mental state travels between depression and not quite.. From experts often avoid giving them to elderly patients no problems having a mastectomy were about to fall off only... 1 positive then on to patients who are beginning this medication it as it turns spinal! Heart is racing and I too just want to ( and sometimes do ) scream outrage. Edge anyway but sometimes in my legs and hips was so severe I couldn ’ t do.. Information and support were a lot of pain in my legs and was! Local cryotherapy have been shown to reduce neuropathic symptoms, ” said Saria do this four times and!